We need to stop treating pain patients as mental patients (literally, if you ask your personal doctor if they believe in chronic pain disease they will most likely tell you that they don't. Or else they will say something about the advances in medications for depression as a treatment for pain, or how there is no conclusive evidence proving that chronic pain exists)
We need to stop treating pain patients as having an addiction problem. Are there patients out there that could have an addiction problem? Sure. I'm not stupid, naive, or set on my position to the point where I am not willing to admit that there could be pain patients with a problem. But IS that problem addiction? Or are they dependent on these medications in order to maintain a quality of life? This is the difference we need to emphasize. And if it is addiction, then odds are is that they don't actually suffer from pain. If you have been addicted to a pain medication long enough, you may have started with medication, but not actually know how much pain your body is in. This is the difference that needs to be recognized. I know a man who once checked himself into a detox to find out exactly how much pain he was in because he knew that some of the side effects of the wrong pain medication can cause pain. I'm not saying that anyone else should do this. In fact I don't recommend it under any circumstances. But I told that anecdote to make a point. If a person is "chasing a high" then they are not utilizing the medications to manage their pain in order to life their life, they are using the medication in order to gain the euphoric effect. What needs to be done is to stop the stereotype that all people who receive or ask for medications classified for the treatment of pain are addicted to the medication.
As of December of 2011 there were 8,113,000 people receiving social security for disability. (www.ssa.gov) Out of 310,500,000 US citizens. (www.census.gov) That is 1 in every 38 US citizens. Does that seem acceptable to you? The question isn't "Why can't these people work and stop mooching off the government?" the REAL question is "Why is no one helping them regain control of their lives?" THAT is the real question. Throwing money at people doesn't help them get their lives back. The basic necessities of life:food, water, shelter, hygiene, work and compassion. These are the things that people need to live. But the greatest thing we need to have for one another is Love.
Anyway, enough of the rant for now, but some further reading for you. There are some staggering statistics and facts in each of these articles. Enough to make me sick to my stomach and shocked and heartbroken while reading them.
The Deadly Morals
The Stigma of Chronic Pain
Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts
Wednesday, February 8, 2012
Monday, June 6, 2011
Word To the Wise
If you are a chronic pain patient, first of all, You are NOT alone. There are millions out there suffering from some sort of chronic pain and thousands that are not getting any treatment what so ever. So how does it make sense, that the people who need help can't because they are called crazy, or depressed, or drug addicts when the people who don't need help, drug addicts, have all of the access? I will tell you a few reasons why...
1) People who are in severe chronic pain can not go into a doctor's office groomed up because they are in too much pain to stand, much less make themselves look pretty.
2)Many people who have severe chronic pain and/or have gone for periods of time without treatment are frustrated, skeptical, desperate,confused and angry
3)People just can't believe in something they can't see right away (the reason why many people with chronic pain go without any testing)
What can we do?
If you are a chronic pain patient one of the best things you can do to help you get treatment is to take people with you who witness your everyday trials. A lot of family members will never be able to understand what you are going through because they are not living it, but if they acknowledge that you are in pain and need help, then they can be a great witness to a doctor letting them know that you are in pain even if you don't look it. I know, I know, you've had to build up a certain amount of strength to the point where everyday people don't even realize there's something wrong with you. But this is where having a witness can help. You don't have to be "weak" and lose that hard earned "skin" but you also have someone to let the doctor know that you desperately need help. A spouse is great, parents are good, kids, siblings, even close friends that you trust.
Another thing to remember is that if you don't have that "skin" yet, or if you can let it go for a short time, this is okay. It doesn't make you weak. It doesn't make you any less than or what you are going through any less than. Sometimes it can help, sometimes it won't. There are some doctors that won't listen the second they hear the phrase chronic pain because in most places it has become synonymous with drug addict, which is something that we should try to change. But cussing out the doctors, or hitting them in some cases, isn't going to do that. Stay calm but allow them to see how much you are hurting. Like I said, some doctors will have their mind made up before you even get to the appointment, but some will see what's in front of their faces, your suffering, and have a change of heart. It's worth a shot.
1) People who are in severe chronic pain can not go into a doctor's office groomed up because they are in too much pain to stand, much less make themselves look pretty.
2)Many people who have severe chronic pain and/or have gone for periods of time without treatment are frustrated, skeptical, desperate,confused and angry
3)People just can't believe in something they can't see right away (the reason why many people with chronic pain go without any testing)
What can we do?
If you are a chronic pain patient one of the best things you can do to help you get treatment is to take people with you who witness your everyday trials. A lot of family members will never be able to understand what you are going through because they are not living it, but if they acknowledge that you are in pain and need help, then they can be a great witness to a doctor letting them know that you are in pain even if you don't look it. I know, I know, you've had to build up a certain amount of strength to the point where everyday people don't even realize there's something wrong with you. But this is where having a witness can help. You don't have to be "weak" and lose that hard earned "skin" but you also have someone to let the doctor know that you desperately need help. A spouse is great, parents are good, kids, siblings, even close friends that you trust.
Another thing to remember is that if you don't have that "skin" yet, or if you can let it go for a short time, this is okay. It doesn't make you weak. It doesn't make you any less than or what you are going through any less than. Sometimes it can help, sometimes it won't. There are some doctors that won't listen the second they hear the phrase chronic pain because in most places it has become synonymous with drug addict, which is something that we should try to change. But cussing out the doctors, or hitting them in some cases, isn't going to do that. Stay calm but allow them to see how much you are hurting. Like I said, some doctors will have their mind made up before you even get to the appointment, but some will see what's in front of their faces, your suffering, and have a change of heart. It's worth a shot.
Tuesday, December 14, 2010
Common Sense,Medicine and Michigan
If you live in the state of Michigan, and you own a television, it is likely that you have seen the commercial about prescription drug abuse. It has cheesy sayings and statistics about how 1200 people died last year from prescription drug abuse. Just something to think about...How many people have died because of not being able to access the prescription drugs they need for treatment, because of fear?
With the way that Michigan has changed their Medicaid laws, and their prescription drug laws in the past five years has made it impossible to receive any sort of pain killer in the state of Michigan.
Even from a common sense point of view let me give you some food for thought.
In my opinion it should be recatergorized as such. Patients that are treated for their chronic pain are treated with extensive painful surgeries, low doses of medication that doesn't touch their pain and doctors who are only running tests to humor the patient with no real care about their quality of life. But when the body is under stress it begins to deteriorate. Think about when you are sick with the flu, you stay home, you sleep, you allow your body to heal. Now combine that feeling, with not being able to sleep, being in undescrible pain, and being told that it is in your head and you are a drug addict and no one will ever help you. That is the story of almost every untreated pain patient. The body will slowly break down and shut down if it is not allowed to heal. This can be seen in cancer patients, diabetes patients, flu victims, infection victims...etc. Not enough research is done on the nervous system, and the regeneration and damage of the nerves. Just because you can not see a cause for pain yet, doesn't mean it is in the patients head. This should be taught in medical schools, but it's not.
As a matter of fact the average doctor spends 1 hour in medical school covering the treatment of pain. One hour out of years of studying. Think about that.
To Be Continued...
~Yours Truly
With the way that Michigan has changed their Medicaid laws, and their prescription drug laws in the past five years has made it impossible to receive any sort of pain killer in the state of Michigan.
The World Health Organization has said that undertreated pain is the number one health problem in America...The number of patients with chronic pain in the U.S. exceeds diabetes, heart disease and cancer combined.Here's a few more statistics for you...
In one study of elderly cancer patients in nursing homes, 26% of patients... received no analgesic at all...Finally, chronic pain caused by arthritis, other bone and joint disorders, and low back syndrome... affecting 25-50%... and similar to cancer pain...untreated.Just in my direct area, and my limited current contact with the outside world, I know of over a hundred patients with chronic pain on disability benefits that can not gain control over their lives because no doctor will prescribe them anything to assist them with managing their pain. There are specialists all over the world that agree if a patient with chronic pain can manage their pain, they can go on to live productive, and full-term lives. But because of lack of care, and a flat out lack of caring on doctors' parts, these patients are home or bed bound left with nothing but collecting the little bit that SSI can provide financially.
Even from a common sense point of view let me give you some food for thought.
- The people who are simply drug addicts looking for a high are going to find a way to get access to these drugs no matter what, doctors being afraid to or restricted on their prescription drug "powers" is yes making it more difficult for drug abusers to gain access, but no stopping them, however those patients who need the medication to control their lives are now stopped from getting the help they need.
- The many patients who collect SSI or State Disability Aid would be able to work at least part time with the appropriate medical care for them, allowing the money from the disability benefits to be used to help others in need, and also would help unemployment numbers, lower numbers of deaths caused by depression, shock or withdrawal, or loss of will to live, would help patients recover fully which would completely wipe out a portion of the funds neccessary for SSI, and help patients have a good quality of life, not to mention stimilate the economy by having productive members of society.
- If you are not currently affected by chronic pain and the effects that the fear of prescription drug abuse effects (your personally or a member of your family) liklihood is that before you die someone you know will. The fear that is in the hearts of doctors is getting shut down by the DEA or similar organizations for overprescribing will only get worse if it isn't stopped now, and that means no treatment for you or your loved ones if/when the time comes that you need it.
- The families of the patients that die because of undertreatment are basically left with nothing. No loved one and no financial stability especially in households where the spouse is the primary caretaker for the pain patient. They do not have the finances to sue doctors for malpractice, negligence or abuse which is what it is in almost every case of untreated/undertreated chronic pain.
In my opinion it should be recatergorized as such. Patients that are treated for their chronic pain are treated with extensive painful surgeries, low doses of medication that doesn't touch their pain and doctors who are only running tests to humor the patient with no real care about their quality of life. But when the body is under stress it begins to deteriorate. Think about when you are sick with the flu, you stay home, you sleep, you allow your body to heal. Now combine that feeling, with not being able to sleep, being in undescrible pain, and being told that it is in your head and you are a drug addict and no one will ever help you. That is the story of almost every untreated pain patient. The body will slowly break down and shut down if it is not allowed to heal. This can be seen in cancer patients, diabetes patients, flu victims, infection victims...etc. Not enough research is done on the nervous system, and the regeneration and damage of the nerves. Just because you can not see a cause for pain yet, doesn't mean it is in the patients head. This should be taught in medical schools, but it's not.
As a matter of fact the average doctor spends 1 hour in medical school covering the treatment of pain. One hour out of years of studying. Think about that.
To Be Continued...
~Yours Truly
- National Center for Health Statistics. Health, United States, 2006,with Chartbook on Trends in the Health of Americans. Hyattsville, MD: US Department of Health and Human Services;2006:68–71
Geriatric medicine: an evidence-based approach; By Christine K. Cassel
An estimated 20 percent of children experience chronic pain and millions do not receive effective pain relief. Children in pain often bounce from doctor to doctor. If they do not get the appropriate treatment they are at risk of developing a pain condition that might remain into adulthood.vii
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